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Understanding Dementia and Dysphagia

Receiving a dementia diagnosis often brings many questions about the future. Families may find themselves learning about changes in memory, communication, and daily routines, but one challenge that can come as a surprise is difficulty swallowing, also known as dysphagia.

Not everyone living with dementia will develop dysphagia, but swallowing difficulties become more common as certain forms of dementia progress. Recognizing the signs early can help families seek appropriate support, reduce the risk of complications, and make mealtimes safer and more enjoyable.1

While every person’s journey is unique, understanding what to look for can help caregivers feel more confident in supporting their loved one. 

Why Dementia Can Affect Swallowing

Swallowing is a process that requires the brain to coordinate dozens of muscles in the mouth, throat, and esophagus.2 As dementia progresses, changes in cognition and muscle coordination can sometimes interfere with that process. A person may have difficulty recognizing food, remembering how to chew or swallow efficiently, or coordinating the muscles needed to move food and liquids safely from the mouth to the stomach.1

Some individuals may also become more easily distracted during meals or have difficulty remaining focused long enough to finish eating and drinking. These changes can begin at any stage of a patient’s dementia.3

Signs to Look Out For

Changes in swallowing can sometimes be subtle at first. A loved one may begin taking much longer to finish meals or seem less interested in eating foods they once enjoyed. You might notice coughing or throat clearing while eating or drinking, food remaining in the mouth after swallowing, or frequent requests for extra drinks to help wash food down.4

Other signs may include:

– Coughing or choking during meals

– A wet or “gurgly” voice after swallowing

– Pocketing food inside the cheeks or mouth

– Unexplained weight loss

– Frequent respiratory infections

– Eating significantly less than usual

– Avoiding certain food textures4

While these signs don’t necessarily confirm dysphagia, they should be discussed with a healthcare provider or speech-language pathologist for further evaluation.4

Creating a Supportive Mealtime Experience

For someone living with dementia, the environment can have a significant impact on the dining experience. Limiting distractions like television noise or patterned plates and placemats can help a patient focus more on eating.5

Creating a calm, comfortable space may help individuals remain engaged throughout the meal. Offering one food item at a time, allowing extra time for meals, and providing gentle verbal encouragement can also help reduce frustration for both the individual and the caregiver.5

As swallowing abilities change, healthcare professionals may recommend modifying food textures or thickening liquids to support safer swallowing. These recommendations are individualized and should always follow guidance from a physician or speech-language pathologist. The International Dysphagia Diet Standardisation Initiative (IDDSI) Framework provides standardized texture levels that help ensure foods and beverages are prepared appropriately for each person’s needs.4, 6

Nutrition remains an essential part of dementia care. Even if portion sizes become smaller, offering nutrient-dense foods, encouraging regular hydration, and maintaining enjoyable mealtime routines can help support overall health and quality of life.4

For some individuals, having convenient, consistently prepared dysphagia nutrition products available may also help reduce caregiver stress while making it easier to maintain established routines. 

Getting Care as a Caregiver

Supporting someone living with both dementia and dysphagia can be emotionally and physically demanding. Caregivers often spend a great deal of time preparing meals, encouraging eating, monitoring swallowing, and worrying about whether their loved one is getting enough nutrition and hydration.4, 7

It’s important to remember that you don’t have to navigate these challenges alone.

Speech-language pathologists, physicians, registered dietitians, occupational therapists, and other healthcare professionals can all play valuable roles in developing a care plan that supports both swallowing safety and nutritional well-being.4, 7

Asking questions, seeking guidance, and accepting help aren’t signs of failure. They’re important parts of providing the best possible care.

Supporting Every Meal

Dementia may change the way mealtimes look, but it doesn’t have to take away the comfort, connection, and dignity that meals provide. By recognizing early signs of swallowing difficulties, creating supportive mealtime routines, and working closely with healthcare professionals, families can help make eating safer while continuing to preserve meaningful moments around the table.

Every shared meal is about much more than nutrition; it’s an opportunity for comfort, connection, and care.

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Always seek the advice of a physician or other qualified health provider with any questions you may have about a medical condition, treatment, or the use of thickening products. The information contained herein is for informational purposes and is not intended to be a substitute for professional medical advice, diagnosis, or treatment in any manner.

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Citations

1 National Foundation of Swallowing Disorders. (2017). Caregiver’s Guide to Dysphagia in Dementia. https://swallowingdisorderfoundation.com/caregivers-guide-dysphagia-dementia/?gad_source=1&gad_campaignid=102699069&gbraid=0AAAAADtQfMsmxSRRXkSEEb8W-9SHEfWqj&gclid=Cj0KCQjw7eXTBhDBARIsAKF-w4567wx5xAOkGGxzxuiZ_uNdd__XhKMKcU1T0az2KirxaL04CEi8D9AaApd1EALw_wcB

2 Panara, K., Ramezanpour Ahangar, E., Padalia, D. (2023). Physiology, Swallowing. National Library of Medicine. https://www.ncbi.nlm.nih.gov/books/NBK541071/

3 Optimizing Swallowing and Eating for the Elderly Lab. (2025). Dysphagia and Dementia FAQ. https://eatinglab.uoregon.edu/2025/01/21/dementia-dysphagia-faq/

4 American Speech-Language-Hearing Association. (n.d.). Adult Dysphagia.

https://www.asha.org/practice-portal/clinical-topics/adult-dysphagia/

5 Alzheimer’s Association. (n.d.). Eating and Alzheimer’s. https://www.alz.org/help-support/caregiving/daily-care/food-eating

 6 Cichero, J. A. Y., Lam, P., Steele, C. M., et al. (2017). Development of International Terminology and Definitions for Texture-Modified Foods and Thickened Fluids Used in Dysphagia Management: The IDDSI Framework. Dysphagia, 32, 293–314.

https://doi.org/10.1007/s00455-016-9758-y

7 Volkert, D., Beck, A. M., Cederholm, T., et al. (2019). ESPEN guideline on clinical nutrition and hydration in geriatrics. Clinical Nutrition, 38(1), 10–47. https://doi.org/10.1016/j.clnu.2018.05.024

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